Dementia is a term used to describe a range of symptoms associated with brain illnesses, rather than a specific disease itself. Common types of dementia include Alzheimer’s disease / Better Health Channel and vascular dementia.
Dementia leads to a gradual decline in a person’s cognitive abilities, impacting their thinking, behavior,, and daily functioning. It can also affect their sensory perceptions, including sight, touch, taste, smell,, and hearing.
While the risk of developing dementia does increase with age, it is important to note that it is not a normal part of the aging process. Although dementia can affect anyone, it is more prevalent in individuals over the age of 85, with approximately 30% of this population being affected.
In Victoria, there are various services available to support individuals with dementia, as well as their families, caregivers, and friends. These services aim to provide assistance and resources to help manage the challenges associated with dementia.
National Dementia Helpline
The National Dementia Helpline / Dementia Australia is a confidential telephone information and support service available throughout Australia. It is operated by trained and experienced professionals who can assist individuals in various situations:
– People with dementia and their family and friends
– Staff caring for someone with dementia
– Anyone concerned about memory loss
The helpline provides practical information, and advice, and can also inform callers about the services offered by Dementia Australia. You can reach the National Dementia Helpline by calling 1800 100 500 at any time, as it operates 24 hours a day.
If you require an interpreter or advocate, the helpline can arrange access to an appropriate service. Individuals who are deaf or have a hearing or speech impairment can contact the National Relay Services at 13 36 77.
Please do not hesitate to reach out to the National Dementia Helpline for any assistance or information you may need.
Cognitive Dementia and Memory Service (CDMS)
CDMS / Australian Dementia Network is a specialized service dedicated to assisting individuals experiencing memory loss or changes in their cognitive abilities, as well as their partners, caregivers, and friends who provide support.
CDAMS offers a range of services including expert clinical diagnosis, information on appropriate treatments, education, support, and guidance for planning for the future. Additionally, they provide information on managing day-to-day challenges and connect individuals with dementia and their caregivers to other services and community supports.
A CDAMS assessment involves medical and allied health consultations, and may also include a home visit. Specialized assessments, such as neuropsychology evaluations, may also be conducted. CDAMS will discuss the results of these assessments and recommendations with the individual, as well as their caregiver and doctor if desired.
If you or someone you are caring for is experiencing changes in memory and thinking, you can reach out to CDAMS for information and advice. You can request a referral from your local doctor or community health center, or refer yourself directly.
CDAMS clinics are located throughout metropolitan Melbourne and regional Victoria. To locate a public or private clinic near you, visit the Australian Dementia Network website.
Dementia Support Australia
Dementia Support Australia offers assistance to individuals who are caring for someone with dementia, especially in situations where the person’s behavior is affecting their care. Our services include assessing the individual with dementia, providing clinical support, information, and advice either in person, over the phone, or via email, as well as assisting with care planning and short-term case management.
Our assessments are provided free of charge for individuals exhibiting behavioral and psychological symptoms of dementia, and our team can also refer you to other support services if needed. For immediate assistance, please contact the Dementia Support Australia 24-hour telephone helpline at 1800 699 799.
Support for people caring for someone living with dementia
Caring for someone with dementia can be incredibly challenging, both physically and emotionally. It is crucial to recognize that to provide the best care for your loved one, you must also prioritize your well-being. Taking time for yourself to recharge is essential to sustain your caregiving role effectively.
Fortunately, there are numerous organizations and support groups available to assist and guide you through this journey of caring for someone with dementia. Seeking out these resources can provide you with the necessary support and guidance to navigate the complexities of dementia care. Remember, you are not alone in this journey, and there are people and resources available to help you every step of the way.
Dementia Australia
Dementia Australia provides a range of services including counseling, information, education, training, and referrals. Resources on dementia are also available in various community languages. For more information, please contact Dementia Australia at 1800 100 500 or visit their website.
Carers Victoria
Carers Victoria offers a range of services to partners, carers, and friends, including advice, counseling, practical information, and support. They can assist in arranging respite care and provide information in various community languages. For more information, please contact Carers Victoria at Tel. 1800 514 845 or visit their website.
Support groups for carers of people living with dementia
There are both formal and informal support groups and networks available for individuals with dementia, as well as for their partners, caregivers, and friends. Connecting with others who are going through similar experiences can provide a sense of reassurance and support.
Carer support groups offer a space for partners, caregivers, and friends of those with dementia to come together, often with the guidance of a group facilitator. If you are interested in finding a support group in your area, please reach out to the National Dementia Helpline at 1800 100 500. The helpline is available 24 hours a day to assist you in locating the nearest support group.
In-home respite care and residential respite care
Taking a break, whether it be for a day, a weekend, or even a week or more, is essential for recharging when you are in a caregiving role. Whether you choose to go on a holiday, attend an event out of state, or need to stay in the hospital for a short period, taking time for yourself is crucial.
Arranging respite services to temporarily take over your caregiving responsibilities while you are away can provide you with the opportunity to focus on self-care. Various services and programs are available to help you take a break and prioritize your well-being.
The Commonwealth Home Support Programme (CHSP) | My Aged Care offers access to respite services for caregivers. You can reach out to them through My Aged Care by calling 1800 200 422.
Aged Care Assessment Service (ACAS)
In order for an older individual to qualify for Commonwealth-funded residential respite care, they must first be assessed as eligible by an Aged Care Assessment Team (ACAT), also known as ACAS in some states. To schedule an assessment, please contact us at Tel. 1800 200 422 or visit the My Aged Care website.
Where to get help