A chronic disease is a persistent condition that does not improve on its own and cannot be completely cured.
Caring for someone with a chronic disease can be a challenging and emotionally draining experience. The progression of the disease and the resulting changes in the person you are caring for can create a complex situation. Educating yourself about their specific condition and how to effectively manage it can be beneficial.
Fortunately, there are numerous tips and resources available online that can assist you in caring for someone with a chronic disease. These resources can provide valuable information and support to help you navigate the complexities of managing a chronic illness.
What are some prevalent chronic diseases?
Some of the most prevalent chronic diseases that impact older individuals include:
- asthma,
- various forms of arthritis such as osteoarthritis and rheumatoid arthritis,
- cancer,
- coronary heart disease,
- dementia, diabetes,
- oral disease,
- osteoporosis,
- stroke,
- mental health conditions (further information available on the Head to Health website),
- chronic kidney disease (additional resources on the Kidney Health Australia website),
- and chronic obstructive pulmonary disease (more details on the Australian Lung Foundation website).
For additional information, please visit the healthdirect website.
Managing chronic diseases
As a carer, you play a crucial role in assisting the individual you care for in managing their chronic disease. Self-management involves several key components:
- Educating yourself about the disease, its treatment, and management strategies.
- Understanding the prescribed medications.
- Developing skills to cope with the fatigue, pain, frustration, and isolation commonly experienced by individuals with chronic diseases.
- Effectively communicating with healthcare professionals by providing accurate information, asking questions, and ensuring you comprehend the information provided. Remember, you will need written consent from the individual to discuss their chronic disease with healthcare professionals. Consult with the healthcare provider on the appropriate procedure for obtaining consent.
- Improving nutrition and overall health.
- Incorporating physical activity and fitness into daily routines.
- Practicing relaxation techniques and problem-solving skills.
- Identifying and utilizing community support groups and other valuable resources.
- Managing the emotions that often accompany chronic diseases.
Additionally, the individual you care for may benefit from attending information sessions tailored for individuals living with chronic conditions. Contact your local GP for details on courses available in your area. You can also explore courses through the National Health Services Directly for further options.
What services are available?
If you are caring for an older person at home, there are numerous aged care services available to assist them in maintaining their independence. These services can include assistance with daily personal care activities like dressing and grooming, household tasks such as cleaning and laundry, or even home maintenance tasks like changing light bulbs or mowing the lawn. To learn more about these Help at home / My Aged Care services.
Alternatively, you may find that the person you are caring for would benefit from the supportive environment of an aged care home to better manage their chronic disease. For further information on transitioning into aged care homes | My Aged Care.
Carer Gateway
Carer Gateway serves as a valuable resource for information on services and support for individuals caring for someone with a chronic disease.
Allied Health Services
Allied health services, such as physiotherapy, osteopathy, diabetes education, exercise physiology, psychology, and other selected complementary and alternative therapies like acupuncture, can be beneficial in managing chronic diseases.
My Health Record
Utilizing a My Health Record can greatly assist in the management of chronic diseases. This tool allows you, along with your doctors, hospitals, and other healthcare providers, to access and share your health information to ensure you receive the best possible care. For more information, please visit the My Health Record website.
Goods and Equipment
For individuals living with chronic diseases, there are a variety of goods and equipment available to aid in daily living activities. Visiting an Independent Living Centre allows you to test out products on display and speak with the center’s occupational therapists through their information lines. To locate your nearest center, visit the Independent Living Centres / National Equipment Database website.
Medicare Benefits
Certain services for chronic disease management, known as primary care services, may be subsidized by the Australian Government through Medicare. The Medicare Benefits Schedule website provides a list of Medicare services that are eligible for government subsidies. Additionally, you can inquire with your doctor about these services.